At 15, Emily Flores had already witnessed her fair share of misrepresentation and ableism. Flores, who lives in Austin, Texas, has muscular dystrophy, a condition that causes muscle degeneration. She uses a wheelchair.
The stereotypes around her disability were cut and dry. Even some of her teachers thought she was unable to succeed on her own.
My English teacher doubted my abilities in writing an essay or analyzing a book, which is why the teacher never took me seriously as a student until I started turning in assignments, Flores said.
Being a person with a disability, there were plenty of frustrating moments. But the biggest was getting able-bodied people to understand my identity: being a disabled teenage girl. One part of me is not less than the other, and the other is not more than. Its hard for society to swallow this pill.
But there is another, perhaps larger issue Flores and other teens with disabilities often face: misrepresentation in media, such as films and television shows.
(The media) portrays disabled people and especially disabled children as little children who just dont have their own real lives, Flores said.
Television shows like ABCs Speechless, a sitcom featuring a character with cerebral palsy, work to highlight the humor of disability rather than deifying or vilifying its characters. But there still is more to be done.
I dont think theres enough shows that really depict what life is really like, Flores said.
Many stories featuring stereotypes are made by people without disabilities, resulting in a lack of realistic representation. For instance, the Oscar-winning film The Theory of Everything stars Eddie Redmayne as Dr. Stephen Hawking, a man with ALS. The film faced backlash from members of the disabled community because a man without disabilities was cast to play Hawking.
In the spring of 2018, Flores decided to raise her voice in protest. Flores started a magazine produced by young disabled people like her. Cr*pple Magazine gives teens living with disabilities a chance to represent themselves. I noticed that a lot of (disabled) individuals started reclaiming it as some sort of identity and (I) always liked the idea. But I guess the main reason why I chose the name was because I feel like it kind of shocks you. Its kind of like, Whoa, who would name a magazine about disability like that? And I think it starts a conversation around honesty, Flores said.
That honesty begins with recognizing that people with disabilities are not defined by their physical condition.
We are in fashion, in the runways and photo shoots. We are in the news, and are valued enough to be heard in politics. We are LGBT, living happily and freely. We are diversity, ranging from all skin colors and languages and backgrounds. We are in the arts, creating meaningful pieces and art that speak louder than words. Basically, we are everywhere, Cr*pple Magazines website says.
Flores wanted to bring teens from around the world together through writing and publishing and to broaden the scope of voices available in Cr*pple Magazine. The contributors, more than 20 writers and artists, are all in their teens and 20s.
I chose to cater this magazine towards teens because Im a teen, but also I think its so powerful when youre giving a platform to teens, and especially a marginalized community, Flores said.
Cr*pple Magazine covers a variety of topics, including LGBT+ issues and pop culture reviews. Some articles, like No, NPR, More Pain Is Not the Answer for Teens with Chronic Pain take a look at misconceptions in politics and media.
Writing for Cr*pple Magazine gave Isaiah Piche, a college student from New York, an opportunity to stand up for issues such as LGBT+ inclusivity with disability. Hes written articles such as, Why Other Pride Events Should Learn From Long Beach Pride and What Does It Mean to Come Out As Gay and Disabled?
I was tired of being voiceless. I knew my experience has merit. (Cr*pple Magazine) gave me a meaningful platform, he said.
Andi Kerr, 18, a contributing writer from Camdenton, Mo., feels the same way as her peers. Much like Piche and Flores, Kerr also advocates for accurate media representation of people with disabilities.
Theres definitely some (positive representation), and I appreciate the effort, but I think were still seeing too much of disabled villains and the theory that disabled people are an inspiration, rather than just people. We need more disabled representation to show younger disabled children that theyre not broken, and theyre not there for sympathy, said Kerr.
Cr*pple Magazine gives contributors an opportunity to publish stories and realize their artistic potential, but it is also a community.
Everyone Ive met is extremely dedicated and driven. We always discuss our ideas together as a group and get input, and we often discuss what were writing about for a few minutes to see how many of us relate or know the topic well. Were very communicative, and were all involved, Kerr said.
Emily Flores is now 17 and a rising high school senior. An article about Flores and Cr*pple Magazine was recently featured in The New York Times. The up-and-coming writer has already been published in Teen Vogue, Womens ENews, Affinity Magazine, and iGeneration Youth, where she interviewed Micah Fowler, an actor with cerebral palsy who is most known for his roles in Labor Day and as JJ DiMeo in the television series Speechless.
Flores plans to create a print version of Cr*pple Magazine, scheduled for publication in the fall of 2019. Until then, the magazine is online at cripplemagazine.com.
The magazines contributing writers encourage other teens living with disability to speak up about their experiences and help improve representation of their community.
I know what its like to be scared to share, but I promise, its worth it, Piche said. Plus, disabled creatives are still desperately needed.
Its really, really important that you use your voice. And especially in this age because it makes your message so much more vulnerable and clear, Flores said.Find More Stories